| “The biggest gap is that people [do] not know that they have Alpha-1. It’s the biggest—without doubt.” Alpha-1 antitrypsin deficiency (AATD) is an inherited systemic condition that can cause damage to a person’s lungs, liver and in rare instances, other organs in the body. Since symptoms can go unnoticed and vary among individuals—and even within families—Alpha-1 remains largely underdiagnosed. Advocates are breaking the silence on the importance of early detection and how Alpha-1 testing can make a difference for people, their families and generations to come. Everyone’s experience with AATD is different, and the experience of the patient advocates featured in this video may not be representative of your own. The information in this video is for disease awareness only and is not medical advice. Always consult a health care professional for medical advice, diagnosis or treatment. Learn about our focus areas: Follow us on LinkedIn: 00:00: The Gap in Alpha-1 Awareness 00:57: Advocating for Alpha-1 Testing |
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